Autism in April

Some show off a blue strand in their hair. Some shine their outdoor house lights.  Niagara Falls displayed its majesty  in blue.  “Light it up blue” says Autism Speaks.

Before Goldi blue was the color of the sea near Grecian islands and it took my breath away.  Blue was the color of the summer sky. It was the color of the early spring forget me not.  It was the ready to eat shimmer of berries from the shoreline. Now, it is the color of Goldi’s eyes when they smile with life and this month blue means autism. 1 in 88 children have it. Most are boys- thus the stereotypical blue (and something about light particles and easier to shine this type of  bulbs )  Be aware- there are people out there with autism.

As a mom of an autistic child, I wonder,  what do I pass on to deepen awareness? There is SO much to be aware of in this complex world. From wars, poverty, pollution, and even things as astonishing as the decreasing population of bees. ( Our honey supply is in severe shortage.)  We each live in our own little world. I’m sure I can hear a “so what?” to the idea of April is Autism Awareness Month.

You might find it interesting to know the names of celebrities with autism.  Dan Akroyd, Daryl Hannah, Temple Grandin, Albert Einstein, Mozart, have it.  There’s some endearing children’s stories like- The Friendship Puzzle by Julie L Coe and My Brother Sammy is Special by Becky Edwards and David Armitage. There’s a website called Greater Good Network that sells really unique items.  ( I bought a cool top and skirt made of colorful scarves) . Proceeds can go towards autism research. There’s a place called Benjamin’s Hope, a home for adults with autism and a retreat center for families with autistic loved ones.  Some colleges including my Alma Mater have expanded their special education program so that graduates will qualify to teach autistic children.  Some snippets of awareness for you.

You don’t have to look far to meet and greet and an autistic person.  They are in the classroom, maybe jumping and flapping. Maybe being pulled out for a much needed sensory break. They are in the restaurants spoon tapping their demand for their meal. They are in the grocery store with a glazed look pacing. They may be living next door where you may hear some banging or screaming blaring from the house. Don’t call the cops- they’ll be fine.It’s only a matter of time before they are calmed down and more like “themselves” again.

They are also at the basketball game singing the National Anthem in front of thousands, winning over people like Simon from American Idol. They may not be talking out loud, but they are expressing the richest of words through the magic of an I-pad. ( see the website Josiah’s Fire) They are on talk shows tickling our funny bones as they share interesting Presidential tidbits. They are painting works of art that could easily be housed in the National Gallery of Art. They are featured in movies like Rainman and Temple.  

And there’s our autistic girl Goldi. She was diagnosed the fall of 2010, and I became aware. I googled and read and interviewed and conversed to really become aware. After nearly 5 years, I realized something I had been ignorant of since that dreary day of diagnosis. It  catches us by surprise and  reminds me to have faith.  When Goldi’s  blue eyes light up, I know it’s there. When she belly laughs,  glides like a swan on her bike, articulates a sentence as though it were a song,  welcomes a guest in our home as though they were royalty, and shows a gold star at the top of those dreaded math drill worksheets. That “Light it up Blue ” moment is God’s amazing greatness and power displayed– teaching me that He is so much greater despite this life’s permanence of something  so wrong. With this awareness,  I feel lit up in all  colors. It’s more like the feeling of seeing the glory of a rainbow.

Greater is He who is in you than he who is in the world.  1 John 4:4

“Did I not tell you that if you believe, you will see the glory of God?” John 11:40

As for you, you meant evil against me, but God meant it for good. Genesis 5:20

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