Tag Archives: fiction

Stories for life on the Spectrum

The first sign of Saturday morning was the whisper of pages that came from Goldie’s bedroom. The whooshing page turning sounded a story’s beginning, middle, and end that captivated Goldie long enough for me to drink my morning cup of tea. Stories for Goldie were visits to the house of the five little monkeys, a picnic with Little Bear and friend, or a night on the phoroscaent sea. Storying for Goldie was life learning on the spectrum.

After an hour, I heard the door pop open. Goldie hopped out ready for the day.

“Hungry for breakfast?” I asked.

Goldie didn’t answer. She went on downstairs and began to play with her brother.

I peeked into her room. There was a mountain of books on her bed. The sagging mattress surely lost its spring . Nearly every book had been pulled off the middle shelf and arranged just so on the top of her bed. I loved children’s stories so, it didn’t take long for a whole bookshelf to be full and then overflow. I had hoped that Goldi was story girl just like I was. The stack of books on a sagging mattress, proved my wish came true.

I eyed each book spine and learned more about where Goldie had been in the wee hours of the morning.

Five Little Monkeys by Ellen Christelow. The perfect reminder of bed time routine. Bathe, get pajamas on, brush teeth, and … then jump on the bed! Routines were like a promise for Goldie. They should never be broken. They provided security and developed a sense of independence. Mundane as some are they must be done each day. Cute little monkeys taught her to smile, laugh, and pepper a routine with joy.

The Big Red Barn and Good Night Moon by Margaret Wise Brown. Goldie knew that the world was big but hidden inside were small but important discoveries just like finding a little pig learning to squeal in a Barn or a picture of a cow jumping over the moon.

Goodnight Gorilla by Peggy Ratham. Goldie always kept a watchful eye on that Gorilla. Just like she does when she sees someone who is doing something that stirs up a question inside. She learned to be observant and notice things that some overlook.

Pancakes for Breakfast by Tommie DePaulo. Goldie spoke gibberish. It was a foreign language no one could understand. But wordless book helped Goldie develop language she held inside for some time. And one day, she could say things, things that should be said, with feeling. Things said during a climatic moment that demanded attention. After the dog and cat spoil the old woman’s pancakes, Goldie learned what to say in such climatic moments: “Oh No! What a mess!” She did and it was always appropriate for her to say so.

Make Way for the Ducklings by Robert Mckloskey had a bright yellow cover. The pages were filled with life like illustrations that moved. I knew Goldie’s favorite part was not when the ducks crossed the street. But when officer Mike went to make a phone call to tell another officer to be careful the ducks were on their way. It was also when Mrs. Mallard waddled with an extra little wiggle. Goldie smiled and rested on both pages. Her look told me that she felt like all was well and right with the world. Sometimes she needed to know that and still does.

Officer Buckle was Goldie’s hero. She knew his rule making talent was useful. She knew it before anyone in the entire Napville School. Perhaps she knew she had talent. The world might be slow to recognize it. But it was there. It still is.

I wondered if Goldie would ever have some really truly friends. Amos and Boris gave me hope. All along the phosphorescent sea, underneath the sky glittered with stars, there was an unexpected friendship. A whale and a mouse would be the best of friends. Even if they would only be present for a very short time, it would be a forever friendship. Goldie patiently waited through the sophisticated vocabulary just because the words sounded so important. But also because they helped speak of a longing she had – a true friendship.

It was Little Bear that taught Goldie how to play. She didn’t know anything past putting dolls to sleep. But then, she was jumping in puddles, fishing with a tree stick, and stirring up cupcakes. All because of a fun, curious, little bear, whose friends knew to play because playing was living life at that age. Little Bear helped Goldie rest in times of play. She had not known the world of play for so long. Reading this story, finally helped her realize she was born to do it. after much ignorance of the fact that she was born to do it.

Stories for life on the Spectrum are not just any stories for Goldie. Just like for any reader, we pick up or put down a book for reasons only we know. But for Goldie, these are some that changed her. They are now a part of her life and always will be.

As she’s lived life on the spectrum, Goldie holds these stories dear. They taught her, shaped her, and helped her become who she is and who she will be later after more book mountains, more storying, and more living.

PROM

The fanciest dress she had ever seen was hers. It was pink and covered with jewels. Goldie immediately spread her arms out and did a small twirl when she found herself inside the dress. Her smile looked bigger and brighter than the Queen of England’s. We combed her hair, added a few rosy touches to her face, and added some extra jewels. 

“Here, are you glass slippers,” I said handing her some sparkling flip flops I had bought for her last summer. She had never worn them before. 

“Mom! They are not glass slippers,” Goldie declares.

“I know but they might as well be.” I said placing them in front of her feet.

Goldie lifted her dress slightly and slipped the flip flops on one by one. She hadn’t worn them once. But they fit perfectly. Just like the ones the fairy godmother had magically appear on Cinderella’s feet. Goldie lifted her dress again and glided over to a chair in front of the window and looked out. Her dress skirt draped perfectly all around her. 

Goldie didn’t look sad. She didn’t look scared or nervous. Her hands rested on her lap. She just looked out into the day that would soon turn into evening. She was still for many silent minutes. 

Goldi had once been so bouncy. She would run through the kitchen, living room, dining room and hallway with some bright green flip flops on and a hot pink tutu.  She would sit on a swing for hours and fly to the sky with bare feet. She would twirl around in her pretend dress up Cinderella dress and then crash to the ground with a belly laugh. Now, she was still. Her head looking out and her eyes looking so intently at a dream.

I stood in the doorway and tried to be as still as Goldie. My heart was keeping me from feeling relaxed as Goldie seemed to be. Seeing Goldie so still was so beautiful. I have seen brides look the same right before they walk down the aisle. My mind wandered out into the day too.

This was the first real Cinderella moment in her life. The first prom that she would attend looking more and more like Cinderella than she had ever before. As a young woman, we have dreams of wearing our Cinderella dresses especially the one that we wear when we are the bride walking down the aisle to our groom. But for Goldie, that moment doesn’t seem possible.

Yet, it does seem possible. Because as she sat there, I did see a bride! Through all of her high school years, her concerts, her classes, her dances, …all those times when things were fancy, something ever so magical was happening – more magic than fairy godmother could do. A miracle was in the works. This Cinderella of mine was getting ready as a bride waiting for her Groom.  One day, He will come, and she will be ready. 

“For the wedding of the Lamb has come, and his bride has made herself ready. Fine linen, bright and clean, was given her to wear.”  Revelation 19:7

The biggest 100

Last year, during Christmas, Goldie met a girl named Wanda. She so poor she only had one dress. But Wanda said she had 100 dresses. The girls laughed at her as they stared at her plain blue dress that she wore everyday to school. One girl had a nice red velvet one. Another girl had a silky green one. Day after day, Wanda would tell them she had 100 dresses. The girls would laugh at her.

“I do too!” Wanda declared.

“I don’t even have 100 dresses!” said a rich girl.

Then one day at school, Wanda’s desk chair was empty. The teacher found a large envelope with a note attached.

“She’s moved away. ” the teacher shared, “Wanda, has moved to the city. Her mother says she won’t be teased there.”

All the girls watched as the teacher opened up the envelope and passed out a picture to each girl.

“It’s my silky green dress!” cried one and I am wearing it!”

“I am wearing my red velvet one! It looks just like me!”

The girls realize, Wanda really did have 100 dresses. She really did line them all up in the closet. She thought not only of the dress but of the girl who wore it. She noticed them all and took care to remember.She had called them friend.

Goldie remembers Wanda. She feels sorry that Wanda was laughed at. She feels even more sorry that she only had one dress and not 100. Then she goes into her room and closes the door. All is quiet for hours. I know that she is in there because I can see a little bit of her shadow in the space between the door and the floor.

Why does Wanda touch Goldie’s heart and mine? This storybook character has lived in many girls’ lives but maybe only for a short time. They have lots of friends. They don’t have to WORK to get friends. They just win them over naturally. They come and they go and then they make new friends. Wanda and Goldie think the same when it comes to friends.

When Goldie is away, I sneak into her room. There are stacks of sketch books underneath her drawing table. I pick up the one on the top. Goldie will know I was here if I put the book back in the wrong place. I carefully turn the pages-

The first girl smiles at me:

Ada. Goldie has written at the top. Some girls wear too short of a dress in my opinion. But Goldie knows Ada and she sees “pretty”.

Then I see another: Eva

Eva is wearing her party ballet dress. Goldie has seen her doing ballet many times. Goldie can’t fly across the stage without falling over. But Eva can and Goldie watches with wonder.

And another: Maralisa. She is all smiles all the time. She has her own fun and funny dress to wear each day depending on her heart beat.

The book pages are wrinkled, worn, and full of dresses and friends who wore them.

There are more than a 100. The next book in the pile are full of still more. Surely if I spent the day counting there would be more than a 1000 dresses and the girls who wore them. These girls have been seen by Goldie and remembered. Friends with them or not.

Goldie has at least 100 dresses, all in a book. She will always have them and remember the girls who wore them. Just like Wanda. Only Goldie is still drawing dresses and the girls who wore them. Friend or not.